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World Parkinson Coalition

World Parkinson Coalition® er en nonprofit organisation dedikeret til at give et internationalt forum til at lære om de seneste videnskabelige opdagelser, medicinsk praksis, plejeprojekter og frivillige arbejde relateret til Parkinsons sygdom. Ved at bringe læger, forskere, sygeplejersker, rehabiliteringsspecialister, plejere og personer med Parkinsons sygdom sammen, håber vi at skabe en verdensomspændende dialog for at fremskynde opdagelsen af ​​en kur og bedste behandlingspraksis for en ødelæggende sygdom.

Formål
For at sikre, at denne mission er nået, vil WPC gøre alt for at engagere og trække på ressourcer fra de globale PD-samfund for at skabe et sted for at diskutere og lære om:
-basisk videnskabelig forskning, der hjælper med at fremme vores forståelse af oprindelsen og progressionen af ​​Parkinsons
-translationel og klinisk videnskab, der hjælper med at bremse sygdommens progression og lette dens indflydelse på dem med Parkinsons
-modeller af plejeafgivelse, der kan sikre den bedst mulige livskvalitet for folk med Parkinsons, deres familier og omsorgspersoner;
Nationalt og internationalt tilgange til hærdning af Parkinsons – herunder regering, faglige samfund og frivillige foreninger, der repræsenterer patienter og familier – der kan bidrage til at opbygge en vedvarende global indsats for bedre at forstå, bekæmpe og i sidste ende erobre Parkinsons sygdom.

Kongressens officielle sprog er engelsk. Verdensparkinson kongresser er åbne for borgere fra alle lande.

Historie
World Parkinson Coalition® blev først dannet som en nonprofit organisation i 2004 under navnet World Parkinson Congress Inc. Navneændringen kom i 2008, efter at WPC’s lederskab følte, at det var vigtigt at adskille navnet på den organisation, der designer og er vært for hver treårige kongres fra selve arrangementet selv.

Ideen til kongressen kom fra et møde i 2002 i Washington, DC. Dr. Elias Zerhouni, den daværende leder af National Institutes of Health, spurgte nogle af lederne i samfundet, hvorfor et møde inklusive alle dem, der var berørt af Parkinson’s, ikke eksisterede og foreslog, at de betragter vært som en. Han plantede frøet, og det var Robin Elliott, præsident for det amerikanske Parkinson’s Disease Foundation (PDF), der henvendte sig til Dr. Stanley Fahn med ideen. Han foreslog, at hvis Dr. Fahn ville hjælpe med at lancere det nye nonprofit og lede det som præsident, ville PDF hjælpe med at sparke den nye organisation i gang.

I 2004 fik organisationen status som nonprofit, ansat sin første medarbejder og arbejdede sammen med næsten 60 frivillige udvalgsmedlemmer for at designe og planlægge den første WPC i februar 2006 i Washington, DC. Programmet design i 2006 blev ledet af Howard Federoff, MD, PhD, som på det tidspunkt var ved Rochester University og er nu på Georgetown University. Den første WPC blev anset for en succes med over 3.150 delegerede fra 56 lande. I 2010 blev WPC 2010-programmet under den programmatiske designledelse af Ted Dawson, MD, PhD fra John Hopkins University, designet, og de mere end 80 frivillige udvalgsmedlemmer arbejdede for at gøre WPC 2010 til en succes med mere end 3.000 delegerede fra næsten 70 lande .

WPC 2013 blev afholdt i Montreal Canada i oktober 2013 og hilste 3.334 delegerede fra 64 lande velkommen. Programmet er designet under ledelse af Serge Przedborski, MD, PhD fra New York, NY, USA med co-chairs Oscar Gershanik, MD fra Buenos Aires, Argentina, Bastiaan Bloem, MD, PhD fra Holland og Israel Robledo, fra Texas, USA. Mere end 100 frivillige udvalgsmedlemmer bidrog til at gøre WPC 2013 til en succes.

For første gang i WPC historie havde organisationen ambassadører. Disse 12 indviende WPC 2013 Ambassadører kom fra otte lande, og alle undtagen en levede hos Parkinson. De arbejdede utrætteligt for at fremme WPC, øge bevidstheden om Parkinsons, indsamle underskrifter for Global Parkinsons Pledge og opfordre folk til at deltage i WPC 2013.

Den fjerde World Parkinson Congress blev afholdt i Portland, Oregon. Her deltog jeg for første gang, fem måneder efter jeg havde meldt ud, at jeg er Parkinsons ramt. Kongressen hilste den største delegation endnu med 4.550 deltagere fra 67 lande. For første gang nogensinde var et ledelsesforum til hjælp for World Parkinson Coalition’s organisationspartnere at dele deres bedste strategier for at forbedre opsøgende og bevidsthed omkring Parkinsons sygdom.

Planer er nu på vej til den femte World Parkinson Congress, WPC 2019, der afholdes i Kyoto, Japan fra 4. til 7. januar 2019.

Vi håber du vil være med i juni 2019 på den 5. WPC for at hjælpe os med at lave historie igen.

Elisabeth, Denmark
Blogger Partner WPC


Engelsk version
Mission Statement
The World Parkinson Coalition® is a nonprofit organization dedicated to providing an international forum to learn about the latest scientific discoveries, medical practices, caregiver initiatives and advocacy work related to Parkinson’s disease. By bringing physicians, scientists, nurses, rehabilitation specialists, caregivers and people with Parkinson’s disease together, we hope to create a worldwide dialogue to help expedite the discovery of a cure and best treatment practices for this devastating disease.

Purpose
To ensure that this mission is achieved, the WPC will make every effort to engage and draw upon resources from the global PD communities to create a venue for discussing and learning about:
-basic scientific research that is helping to advance our understanding of the origins and progression of Parkinson’s;
-translational and clinical science that will help slow the progression of the disease and ease its impact on those with Parkinson’s;
-models of care delivery that can assure the best possible quality of life for people with Parkinson’s, their families and caregivers;
-national and international approaches to curing Parkinson’s — including government, professional societies and voluntary associations representing patients and families — that can help build a sustained worldwide effort to better understand, combat and ultimately conquer Parkinson’s disease.

The official language of the Congress is English. World Parkinson Congresses are open to citizens of ALL countries.

History
The World Parkinson Coalition® was first formed as a nonprofit organization in 2004 under the name World Parkinson Congress Inc. The name change came in 2008 after the WPC leadership felt it was important to separate the name of the organization that designs and hosts each triennial Congress from the actual event itself.

The idea for the Congress came from a meeting held in 2002 in Washington, DC. Dr. Elias Zerhouni, the then head of the National Institutes of Health, asked some of the leaders in the community why a meeting inclusive of all those touched by Parkinson’s did not exist and suggested that they consider hosting one. He planted the seed and it was Robin Elliott, President of the US based Parkinson’s Disease Foundation (PDF) who approached Dr. Stanley Fahn with the idea. He suggested that if Dr. Fahn would help launch the new nonprofit and head it as President, that PDF would help with the initial legwork to get the new organization off the ground.

In 2004, the organization gained it’s nonprofit status, hired its first member of staff, and worked with nearly 60 volunteer committee members to design and plan the first WPC in February 2006 in Washington, DC. The program design in 2006 was led by Howard Federoff, MD, PhD who at the time was at Rochester University and is now at Georgetown University. The first WPC was deemed a success with over 3,150 delegates from 56 countries. In 2010, under the programmatic design leadership of Ted Dawson, MD, PhD from John’s Hopkins University the WPC 2010 program was designed and the more than 80 volunteer committee members worked to make WPC 2010 a success with more than 3,000 delegates coming from nearly 70 countries.

The WPC 2013 was held in Montreal Canada in October 2013 and welcomed 3,334 delegates from 64 countries. The program was designed under the leadership of Serge Przedborski, MD, PhD from New York, NY, USA with co-chairs Oscar Gershanik, MD from Buenos Aires, Argentina, Bastiaan Bloem, MD, PhD from the Netherlands, and Israel Robledo, from Texas, USA. More than 100 volunteer committee members helped make the WPC 2013 a success.

For the first time in WPC history, the organization had Ambassadors. These 12 inaugural WPC 2013 Ambassadors came from eight countries and all but one were living with Parkinson’s. They worked tirelessly to promote the WPC, raise awareness about Parkinson’s, collect signatures for the Global Parkinson’s Pledge and encourage people to attend the WPC 2013.

The fourth World Parkinson Congress was held in Portland, Oregon. The congress welcomed it’s largest delegation yet with 4,550 attendees from 67 countries. For the first time ever, a leadership forum was help for the World Parkinson Coalition’s organizational partners to share their best strategies for improving outreach and awareness around Parkinson’s disease.

Plans are now underway for the fifth World Parkinson Congress, the WPC 2019, to be held in Kyoto, Japan from June 4 – 7, 2019.

We hope you will join us in June 2019 at the 5th WPC to help us make history.

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